Charna is blind with no light perception
First month - March 28 to April 22, 2018
First day March 28, 2018
-Video begins with the tears and ends with agreeing to touch the belt cane with her hands.
Charna is two and rejects most new things, her language is delayed. Her motor is wide based gait, she is not allowed in the toy room.
Later in the day March 28, 2018
-Charna is seen wearing her cane in the family kitchen and family room. The video ends when her cane signals drop-off, she cries.
Later in that evening March 28, 2018
-Charna is seen wearing her cane in the family room. She is playing with her sister. Dad tries to get her to stand up on her own, her sisters help her to stand.
Exploring with dad April 2, 2018
-Charna is seen wearing her cane in the home. Dad is working on her walking, turning, following. She says "cane" but mostly she is talking to herself. Her dad helps her get unstuck.
She sits down on ground by herself, needs help to stand, walks with intention to mom.
Exploring with dad April 3, 2018
-Charna shows she is learning how to respond to the cane. When the cane stops her at the wall, she turns to locate a clear path. Her dad is teaching her "beep beep wall" (vand in yiddish).
Exploring with dad April 4, 2018
-Charna moves about her kitchen. We see her cane contact a wall, she turns to locate a clear path. When she falls down, she stays seated. Her language and play is repetitive, focused on self.
Visiting friends April 4, 2018
-Charna is seen sitting on her own. She is talking with herself, moving the cane about. She appears to want to stand up and her dad encourages her. He helps her up and they walk about their friend's home.
Mastering simple turns April 13, 2018
-Charna is moving about her kitchen with her dad. Her language is more interactive. She receives praise for making turns to follow dad's voice and location.
Getting stuck/unstuck April 13, 2018
-Charna is moving about her home with her dad. She has a series of moments where her long belt cane frame becomes stuck and free again. Sometimes her dad' frees the cane and other times she does.
Story of stairs April 13, 2018
-Charna has just returned from her trek on the family staircase. Her nanny greets her to discuss her adventure. Charna responds about stairs, greets her nanny, and changes the subject to a stim activity.
Kitchen conversations April 13, 2018
-Charna, her mom and dad are in the kitchen and play room. She is experiencing cane information in many forms. She sits down on floor, asks for help to stand up again. Dad is able to get her to walk to her high chair with promise of a cookie.
Headed outside April 13, 2018
-Charna and her dad head down stairs She is experiencing cane information in many forms. She sits down on floor, asks for help to stand up again. Dad is able to get her to walk to her high chair with promise of a cookie.
Sunny day outside April 13, 2018
-Charna and her dad explore the sidewalk in front of their home. Charna's pace is stop/start. Her dad does a lot of prompting. The moment she feels the sunshine on her face is priceless. She is not yet able to stand back up without help. Language is limited.
Exploring tactile path info April 13, 2018
-Charna stays upright after connecting with frame-first collision with a gate, but takes a tumble when she encounters a driveway ramp. Her language is repetitive, but she is also experiencing real actions and her dad is connecting them with concrete words.
Charna stands up on her own April 14, 2018
-After her long day of exploring the sidewalk, two weeks after getting her belt cane Charna learns how to stand up wearing her cane. Her parents allow her time, give her lots of encouragement and praise.
Charna sits down gracefully April 17, 2018
-Charna shows awareness of her position in the hallway allowing her to turn 360 degrees, where before she needed her dad's help. She runs away from dad. He encourages her to walk to him on her own. She is learning to ask to take off her cane.
Learning to back up April 17, 2018
-Charna's dad is teaching her to back up and turn around when her cane frame gets caught in furniture legs. When Charna turns in circles, she appears to be exploring what the cane frame tells her about her space.
Her first magnet belt, shorter frame
Exploring the house April 18, 2018
-Charna is encouraged by her dad to explore, seek, find and play. When the cane frame stops her, he is teaching her cane "stuck", "turn", "straight" and "stei auf" (stand up).
Rolling on the floor April 18, 2018
-Charna's rolling on the floor, playing with a toy. She bangs cane frame on the floor. She intertwines her legs around the frame and later she asks to take it off, and her dad takes it off.
Coordinated cane frame April 20, 2018
-As Charna moves about her home, the cane frame contacts many toys and other objects. She pushes them out of her way. At the end, her sister is teasing her and she uses the cane frame to ward her off.
Lifting and probing April 22, 2018
-As Charna moves about her home, she goes into the toy room filled with toys. She appears to direct the cane frame to make contact with objects. She appears to move about with very little prompting from her dad.
One month update April 22, 2018
-Charna moves about her home interacting with her dad, her nanny. She reaches down to explore toys she located. Her language is more interactive. She needs very little prompting to move about freely.