Matias' Visual Impairment is Due to

Leber's Congenital Amaurosis (no light perception)

Parent perspective

 Matias at first seemed to reject his belt cane. Kylie said she is glad she was able to convince him to use it at age 2. At 4-years-old, he is a long cane user - and a good one. He is able to walk independently in his neighborhood. Listen to Kylie

One minute video before & after 

 

Matias' progress! Walking ability before getting a belt cane and after one month of wearing his belt cane. Look ma' no stroller!

One minute video before & after 

 

Compare push toy to belt cane

One minute video before & after 

 

Compare trampoline play to dynamic toy play

One minute video before & after 

 

Compare kitchen mobility stuck to objects, freely crossing open space.

  FEATURED VIDEO   

March 6, 2020

Thirty-five-month-old Matias

After two years wearing belt cane

    Walks freely outside 

    Improved language

    Improved motor skills

Before belt cane

November 11, 2018

Twenty months. He uses a push toy briefly and moves about holding  furniture, crawling low to the floor

Repetitive play

Quiet

 

Improvised Mobility tool

Heavy cart

 

November 17, 2018

Twenty-months old with Human guide ascending stairs.

He is not able to locate edge of the ascending stair and so misses the step.

Stationary play

Improvised Mobility tool

Heavy wooden chair

Human guide.

Neither tool promotes expansive concept development.

Stationary play with cabinets

He attempts to cross open space, but returns to the cabinets, calls for a guide.

Human guide descending stairs.

He is not able to locate edge of the stair

He does not know how deep the stair is.

 

Human guide poor path detector (hint only a cane can be that).

Human guide is better for orientation (where)

Improvised Mobility tool

Heavy chair

November 26, 2018

Human guide descending stairs.

He is not able to locate edge of the stair

He does not know how deep the stair is.

Matias doesn't come when called until she reaches out and offers him her hand.

Improvised Mobility tool

Stroller

December 9, 2018

Twenty-one months old Improvised Mobility tool

Heavy wooden chair

 

With belt cane

December 15, 2018

Twenty-one months of is tearful with belt cane introduction.

Matias cried each time mom put the belt cane on him.

his family found a way to communicate the cane will remain on.

December 15, 2018

Twenty-one months of is tearful with his belt cane introduction.

Matias cried each time mom put the belt cane on him.

his family found a way to communicate the cane will remain on.

December 18, 2018

Human guide with granny hand.

The cane tip locates the edge of curb, a bush, the surface ahead.

January 5, 2019

At twenty-two months, Matias walks independently.   

January 18, 2019

At twenty-three months, he is walking in the snow.           

He is pulling his mom forward eager to explore.

January 26, 2019

At twenty-three months, he is descending stairs better with belt cane

 

January 29, 2019

At 2 years, he is dancing to the music with belt cane.

February 25, 2019

At two-years of age he is walking well with a human guide and wearing his belt cane

March 20, 2019

April 30, 2019

May 12, 2019

Twenty-six months. Matias is wearing belt cane at home

August 12, 2019

At twenty-nine-months Matias freely explores at the mall    independently walking in the mall.

Belt cane prevents him from bodily colliding with a store. He controls cane shafts and moves them about at will.

August 25, 2019

At thirty-months, he is freely crossing open space   

Age-appropriate play

September 14, 2019

Matias says "cane".  

Cane skills:

Thirty-one months, He understands when he is told his cane is stuck and frees is cane.

October 19, 2019

Thirty-three months, he has outgrown his first belt and busted cane from wear.   

November 30, 2019

Outgrow belt and busted cane.  

December 31, 2019

Thirty-five months, Matias wears his cane playing in the creek water.

February 3, 2020

Three-years old and able to ascend stairs wearing belt cane

He is running

 

March 28, 2020

Playing catch with dad   

wearing belt cane 

Running, because he likes to run.

Control his cane with his free hand

Cane skill shorelining

He reaches his right hand, to investigate what cane contacted, touches the wall.

Letting go on sidewalk.    

Matias is being encouraged to let go of his guides' hand during the walk.

July 10, 2020

Not yet four years old. He is attempting to employ rod cane skills

He does not create a cane arc and so this is not yet the correct mobility tool for him.

August 6, 2020

August 14

Return to belt cane

Matias walks about the home and outside. He is newly back to wearing his belt cane again.

August 16

Matias is an expert belt cane user once again, able to walk on grass with it- it takes finesse.

August 18

Almost four years old, wearing his belt cane he locates drop-off. Matias walks more steps with fewer prompts when wearing his belt cane.